Patient Information
What is PECSIG?
PECSIG is a society of UK medical professionals with expertise in caring for Children with heart disease. The majority of our members are Consultant or Specialist Paediatricians, regulated by the General Medical Council and members of the Royal College of Paediatrics and Child Health. They have all developed additional specialist experience in Children with heart disease including echocardiography (heart scans). You can read more about their role and how you might get referred here.
Information for Mum's & Dad's
We've teamed up with two great partners to bring you clear and accurate information leaflets. We've also got a whole host of pictures (worth a thousand words) so you can understand your child's diagnosis. Please remember that every child and every heart is just a little bit different. Our members understand this and so may explain a situation differently to what you might find here.
If you've got an idea for something else or can't find what you need, please get in touch here.
Our Parent Resources
Information on Medicines and Drugs
Information on Arrhythmias and Electrical things (e.g. Long QT)
Information on Structural Problems (e.g. hole in the heart)
Ventricular Septal Defect (VSD)
Truncus Arteriosus
Tricuspid Atresia
Transposition of the Great Arteries (TGA)
Tetralogy of Fallot (TOF)
Supraventricular Tachycardia (SVT)
Single Ventricle Heart
Pulmonary Stenosis (PS)
Pulmonary Atresia with Venticular Septal Defect
Pulmonary Atresia with Intact Venticular Septum
Patent Ductus Arteriosus (PDA)
Long QT Syndrome
Isomerism and Laterality Disorders
Hypoplastic Left Heart Syndrome (HLHS)
Ebsteins Anomaly
Double Inlet Left Ventricle
Dilated Cardiomyopathy
Congentitally Corrected Transposition of the Great Arteries (ccTGA)
Coarctation of the Aorta
Atrioventricular Septal Defect (AVSD)
Atrial Septal Defect (ASD)
Aortic Stenosis (AS)
Anomalous Pulmonary Venous Drainage (TAPVD, PAPVD)